Hemophilia A and B are rare diseases, most often hereditary, which affect around 7,000 people in France. They are characterized by an inability of the blood to clot properly, leading in severe cases to uncontrolled bleeding, which is either spontaneous or linked to minor trauma.
A poorly understood disease
There are a large number of preconceived ideas surrounding hemophilia, a sign that it is a disease that is poorly understood by the general public. Yet today, it is possible to live better with hemophilia by challenging false beliefs.
A support platform
This is why the “Patient Voices” community has just created a podcast to give a voice to hemophilia patients. This platform for mutual aid, support and sharing between patients suffering from chronic illness, recounts between resilience and hope, the daily life of those who live with this illness little known to the general public.
Recurrent bleeding
Although a person with hemophilia does not bleed more or faster than a person without hemophilia, they bleed longer and recurrent bleeding can lead to significant deterioration, particularly in the joints. The most common type is hemophilia A, which affects around 320,000 people worldwide.
More information on https://singularite.voixdespatients.fr
 Didier Galibert
|
20/04/2021 | 
